Wednesday, May 27, 2009

Sotomayor - First Hispanic & Type 1 Diabetic?

I don't know that much about Supreme Court nominee Sonia Sotomayor yet. I just know the press has made a big deal about her being a woman and Hispanic. The more diverse the Supreme Court, the better, in my opinion (obviously taking into account who's qualified and who's not).

Well, today I ran across something else that I'm sure will come up in the confirmation process: she's got Type 1 Diabetes! As much as I don't wish this stupid disease on others, I always secretly wish for more high profile Type 1's. There's so much misinformation out there about this disease and having more intelligent, open, famous folks speaking up about it can only serve to correct some misconceptions. I look forward (at least now I do...hopefully that won't change later) to what's to come.

I'll start off with the process. Here are some notes that need to be added to the Time article (Sotomayor's Diabetes: Will It Be a Handicap?) I just read:

"Once known as juvenile diabetes, Type 1 diabetes typically begins in childhood - Sotomayor was diagnosed at age 8 - eventually causing the body to slow production of insulin, the hormone necessary to break down sugars found in food."
Eventually causing the body to slow production of insulin? Do they mean before you're diagnosed or what? Type 1 is usually diagnosed when 90% or more of the beta cells in the pancreas have already been destroyed by the immune system. Most of us by then have virtually no insulin production whatsoever. It's not a slowing down. It's a complete or near-complete stopping. An absolute, life-threatening deficiency that results in coma and/or death if not caught in time. "Eventually" makes it sound like you get the disease and then some years later your insulin production winds down. Shah, I wish.
Type 1 diabetes patients must rely on an artificial source (of insulin); some patients wear insulin pumps, which are permanently inserted under the skin...
Fail. Popular misconception. Even the anesthesiologist at the knee surgery clinic had no clue about my pump, thinking it was implanted or something. There's nothing permament about today's insulin pumps. The insulin is delivered via an "infusion set", through a tube connected to a tiny canula inserted just under the skin, held in place by an adhesive patch. Nothing near permanent. You must do a whole new infusion set (new insulin reservoir, new canula, new location under the skin) every 2 to 3 days. Now, to continue...
...permanently inserted under the skin to deliver a dose of the hormone after each meal or snack...
We don't just have to take insulin after a meal or snack. Another very common misconception that I'd just like to mention here. It's actually all the time that we need insulin. All people (you, too!) have to have insulin in the body 24/7, whether you eat or not. This is called "basal insulin" and your body needs it constantly. Insulin pumps deliver small doses of insulin every minute of the day, according to personalized patterns (like you usually need more insulin in the morning than in the afternoon, so you might set your pump to give you less after 1pm). Then we give ourselves more insulin (a "bolus") when we eat or otherwise need to due to stress, illness, whatever.

People on insulin shots also have to give themselves basal insulin. Newer analogs like Lantus and Levemir allow them to take 1 shot of basal insulin per day that will then slowly absorb at a fairly constant rate under the skin over about 20 to 24 hours (as opposed to the older basal insulins which were given twice a day). Then they must take an additional shot of a different faster-acting insulin for meals, etc. So they use two different insulins. (Or older mix insulins like 70/30, but I'm just trying to make things simple, lol.)
One synthetic product called pramlintide, which was recently approved by the FDA, appears to control blood-sugar levels more naturally, without the huge dips in glucose that can occur when the body receives too much insulin at one time.
Controls it more naturally than what??? Insulin?? You still have to take insulin like always! Pramlintide (brand name Symlin) is the synthetic version of another hormone (amylin) that is made by the pancreas at the same time insulin is. That's right.. Type 1 Diabetics don't make insulin, amylin or c-peptide. Thrice screwed. Amylin mainly controls the speed at which the stomach empties into the small intestine and it reduces the nutrient-stimulated sugar release that the liver would do in its absence (along with some other less-researched things like affecting bone breakdown rates, brain chemicals, etc). By adding amylin shots in addition to insulin, the body functions a little more normally, yes... meaning the stomach empties at a more normal rate so the blood sugar doesn't rise as quickly, giving the insulin shot/bolus more time to get into the bloodstream before the food's glucose does. But you're actually MORE likely to have "dips in glucose" on amylin because often the insulin will hit before the food does. It takes extra care to figure out how to adjust your insulin (with a pump is easier) for a later time. Hypoglycemia is one of the side effects. Man, oh man. Guess they should have read the brochure on the Symlin website... (Btw: This product isn't available in Europe. And it was approved "recently" in America if that means a few years ago. I was using Symlin back in America in 2005.)
"In the days leading up to this nomination, there were several media reports suggesting that Judge Sotomayor should not be considered for this position simply because she has Type 1 diabetes," said Dr. R. Paul Robertson, president of the American Diabetes Association... "The advancements in the management of Type 1 diabetes have been just amazing over the last two decades, and the ability of people to manage their diabetes successfully has been proven. People with diabetes can function and live a long and healthy life."
That's right, but it takes work and you never get a vacation from it. Although this disease does mean some more dangerous jobs may not be allowed in some countries (pilots, divers, firefighters, military, etc), there's no reason I can see why being a Supreme Court Justice would be a problem. If Sotomayor takes care of herself (she'll have health insurance, so that's a big obstacle for many that she won't have to deal with), there's no reason she couldn't be sharp as a tack and sitting on the bench at 80 years old.

Coffee-Flavored Coffee

One of my best friends likes to say that "Denis Leary is God". Well, I'm not so sure about that, but this (clip below) still absolutely cracks me up. It's one of my favorite segments from his best HBO special (imo) 'Lock & Load', so put it all in the context of the mid-90's, the rise of Starbucks and the dot-com address, etc. And if you don't like lots of swearing and angry, sarcastic humor, ummm... again, I must wonder why you're reading my blog =;-> and... you probably better not watch this clip. I'm serious... you were warned... (but you'd be missing out... such a shame...)

Denis Leary, on Coffee...


[Vid link: http://www.youtube.com/watch?v=aQxgv4QtKM8]

ROFL at the 27 inches of underwear and at 6:00 to 6:20...


Tuesday, May 26, 2009

Missing a big, bitey turtle, by chance?

Because if you are, I think I have a pretty good idea where it might be...

Schnappschildkröte beißt um sich und geht auf Passanten los

Rough translation and summary:
An aggressive 12-Kilo (that's about 26 pound) Central American snapping turtle wreaked havoc in Duisburg on Tuesday, attacking pedestrians and the folks who were trying to catch it. Police say that they're pretty sure they can identify the owner from the bite wounds alone. It's been illegal to sell, import or breed animals like this here since 1999.

You know, maybe he was just sick and tired of Germans. Maybe he just wanted to go home.

(^That was a sarcastic joke, btw. It's sad to seemingly need to explain things like this to adults.)

Wednesday, May 20, 2009

Hand Sanitizer!

As promised, here's my pic of Wick Erste Abwehr, an actual hand sanitizer that one can find in Germany! I know! Shocking! We got ours at an Apotheke near the Hauptbahnhof in Duisburg. A lot of online pharmacies seem to carry it as well. It's a foam and comes in a little pump can about 6-7 inches tall, perfect size for purse or backpack. (Although, in my opinion, the smell of the foam leaves something to be desired. Hey, as long as it works.)

The same thing is also sold as Vick's First Defence in the UK.

Some have said there is also something called "SOS" in Germany that's a hand sanitizer, but I haven't personally seen it. The only thing called like that I could find was a Nivea cream for dry skin. Hmmm. Anyway, so now there's a choice, a substitute for Purell and handy wipes when you're out and about, can't conveniently wash your hands and don't feel like rubbing all the U-Bahn dreck into your eyeball or onto your Brötchen.

Update: Anja let me know that it's called "Händedesinfektionsmittel", and she likes Bode's Sterilium Händedesinfektion. Thanks!
------------

While searching for some more info about this product in English, I happened across this commercial for the nasal gel sold in New Zealand. It's really funny =:-) Just watch...



LOLOL! That's great.

[vid url: http://www.youtube.com/watch?v=YxXIhM9nd2o]

Tuesday, May 19, 2009

This is really it...

LOL, this absolutely cracks me up. I've been stuck singing "I'll be.... I'll be performing the songs..." for like two days now, rofl. Also, below that, check out the infomercial guy in the Slap Chop remix (perhaps you folks in America will recognise him). I don't, but it's not a prerequisite for enjoyment. Wow, Steve Porter, you rule =;-) These are so great. Can't wait for more!


[vid url: http://www.youtube.com/watch?v=NVhPcc9gaEY]


[vid url: http://www.youtube.com/watch?v=UWRyj5cHIQA]

P.S. Any Michael Jackson-bashing comments will get deleted. (I'm totally serious. This is really it.)

Sunday, May 17, 2009

And it's Norway!

After 30+ years of consistently choosing the losers, Bunny is happy now that he finally chose the winner last night, lol.

WINNER: NORWAY


COUNTRY NAME LINKS GO DIRECTLY TO YOUTUBE VIDS: And as usual, Germany came in somewhere in the lower third (deservedly so, this year - OMG - the performance just ruined any chance the song would have had). I personally understand Norway winning (they did it with the biggest number of votes ever received by one country in over 50 years of the Eurovision Song Contest, lol). 'Fairytale' is catchy and unique. I like it. What I didn't get were the others in the top five. Iceland at number two... ok, it was alright. Azerbaijan at third... ok, but third? It just sounds like stereotypical Euro dance music to me... yuck, yuck. I really thought Turkey would be second or third, if for nothing other than the beat. And that UK song... eeehhh. Andrew Lloyd Webber or not... eeeehhh...

Well, in the end, barely any of the songs outright sucked. Most of them were surprisingly pretty decent for Eurovision. Definitely an improvement over the crap from last year. Last year I couldn't even bring myself to vote until Bunny forced me to, lol. This year I believe we voted for Norway (yay!), Estonia (great song), Lithuania (hey, this was a decent song - what does everyone have against poor little Lithuania?) and Malta.

There's one more thing I have to post at the moment, just because it's one of the weirdest damned things I've seen. WTF is up with this? The song is ok, but then there's this turquoise-green Grasshopper Man with two short guys dressed up like the Joker dancing around the ballerina chick? I wonder if someone from Albania has some kind of explanation. I hope so. Like maybe these are characters from some Albanian fairytale? Otherwise... man, no excuse, lololol...



P.S. For those of you new to Europe, this song contest is one of the most watched live events in the world. See Wikipedia link here for further explanation.

Saturday, May 16, 2009

Sieben, Sieben! It's BACK!

Eurovision Tonight!
Tonight at 9pm German time... yes, it's that time of year again! I'm betting on Norway at the moment in tonight's hellish euro-spectacle, even though their lyrics sound kinda stupid in English. Don't forget to watch! You might want to wear earmuffs and goggles, though, as a first layer of defense. [See Eurovision Song Contest for explanation.]

Hand Sanitizer!
Did I say "defense"? That reminds me. Bunny found some funky-smelling hand sanitizer that comes out as a foam. They have it at a pharmacy across from the Duisburg Hbf and who knows where all else. It's called "Erste Abwehr" (First Defense), made by Wick (known better by us as Vick's =;-). So now you at least know something to ask for, in lieu of Purell. I'll post a pic of it at some point.

Health Update
And now the exciting health update. Blood tests slightly better, but still totally not normal. Abdominal ultrasound revealed nothing, defying the odds with no gallstones. Have more appointments next week...

Resident Permit Renewal
And lastly, my residence permit (the first 3-year one) expires soon. I know we should have gone to the Ausländeramt sooner, but gee, between health problems, closing a business and dealing with a tax nightmare, it hasn't exactly been foremost on our minds. I figured that since we got the first one within a week, going there a month early would be good enough. (Ummmm. Nope. Let this be a warning to you!)

We went on Thursday only to find out they're only open for ONE HOUR (8 to 9am) Mondays, Wednesdays and Fridays. Yeah, seriously. WTF??? How incredibly German. Always making things more complicated. And so convenient for people who work, for example.

So we went back on Friday, promptly at 8am and gave them all the paperwork they wanted for renewal, which includes things like a bank statement showing how much rent is, 'paycheck' stubs, copy of my health insurance card, etc. They then said thanks, it will be UP TO FOUR MONTHS before I get the permit!

FOUR MONTHS?! Holy crap! Mine expires in like 3 weeks, lol. F*ck. We are going to the UK in August (rain or shine, walking or not, healthy or dying... for a very, very, very important purpose that I will reveal in due time), so the Germans will give me some paper that tells the German passport control folks to let me back in the country. Hopefully British immigration (notorious for often grilling innocent vacationers about every detail of their lives) won't get an attitude about that. Please hurry, Ausländeramt! I'm so pitifully non-threatening, even when I talk sh*t about the things I hate about your country, lolol. And I already have more than enough stress in my life without having to worry about this as well. Please?

P.S. 'Sieben, Sieben!' refers to my first Eurovision, 2007, when THIS SONG FROM UKRAINE cam in at number 2. LOL. It would have won if not for 'Molitva' from Serbia. Still love this one - I still listen to it. Great song.

Thursday, May 7, 2009

No Surgery

So, apparently there's some seriously screwed up things wrong with my blood, so the surgery yesterday was tentatively rescheduled for today... pending re-testing.

The new testing came back today and... results are even worse than yesterday. So surgery is indefinitely postponed. They can't operate on someone with these blood test results when said patient already has multiple effed up risk factors.

Among several other things out of range (which are quite weird and have no known cause), it also looks like I have some kind of super massive infection or inflammation. However, I have no fever, no pain, nothing inflamed (that I know of) and no recent illness. I really feel ok. Weird. WTF? Everything was pretty much fine just a few months ago!

So, I must go to see my Hausartzt (GP/family doc) as soon as humanly possible to try to figure out what the hell is going on before I keel over. We're calling them tomorrow, hopefully for an appointment Monday. I expect more blood tests and likely a referral to a specialist.

God only knows when and if I'll ever be able to get my knee surgery now. They said they won't operate until this gets resolved.

There's always something else wrong.

Maybe I'm allergic to Germans.